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r/iih PUBLIC
This is a safe, kind community for those living with Idiopathic Intracranial Hypertension (IIH), a rare disease where a person has a high level of intracranial pressure; to learn, connect, share experiences, and find support. Those who are in the process of being diagnosed, have been diagnosed, or have loved ones with IIH are all welcome. Older names that have been used include Pseudotumor Cerebri and Benign Intracranial Hypertension.
Marketing Summary
r/iih is a PUBLIC community on Reddit with over 18,438 members. It currently has a neutral sentiment with an engagement rate of 18.1%. With a community friendliness score of 50, this subreddit presents a high conversion potential for authentic brand participation. Self-promotion is generally allowed according to recent analysis.
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Rules & Compliance
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Subreddit Rules
- name calling, trolling, personal attacks, alienating members, or cruel/crude comments. Spamming (including excessive posting) will not be tolerated as these practices overshadow the ability for other members to have their posts seen. Violating posts or comments will be removed.
- No giving/requesting medical advice: This is not a medical advice forum and we are not qualified to give specific advice regarding IIH or any other condition. Posts asking for medical advice and comments making specific medical recommendations will be removed. If you are experiencing new or concerning symptoms, please consult a physician before posting here.
- We are NOT qualified to diagnose you: We can't diagnose you here. Any posts asking, "Is this IIH?" will be removed. If you think you may have IIH, please consult a physician. This sub is for diagnosed individuals or people in the diagnosis process. This sub is full of information for you to peruse though, including posts asking questions about the diagnostic process, medications, tests, labs, symptoms, etc. and you can find answers by using the search bar in our sub or reading the resource pinned to our front page.
- Community for people with IIH / Keep on subject: Please respect that this is a community for people who suffer from a rare illness. For many, this is the only place to meet and converse with people who share that experience. This is not a general forum for advice regarding general migraines or other things not related to IIH. Off-topic posts and comments will be removed.
- Use proper post flair: Please use proper posting flair.
- No solicitation or fundraising: Posts asking for donations will removed. If you would like to post an IIH-specific research study, you must message mods first for approval. Unapproved studies will be removed.
- Tag NSFW content: Many people are sensitive to NSFW content. In order to allow them to choose whether to participate in such conversations, all NSFW content (including references to self harm and suicide) must be tagged appropriately. Untagged posts containing NSFW content will be removed.
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