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r/ehlersdanlos PUBLIC
This is a support sub for those with Ehlers-Danlos syndrome (all types) and HSD—diagnosed or waiting to be diagnosed. This is a welcoming place for those affected (or those simply wanting to learn more) to ask questions, share successes and failures, feel less alone, and discuss everyday life. Before participating, please read our rules. This subreddit does not allow medical advice. Thank you!
96,090 members
Created: Aug 2011
Language: EN
POSITIVE SENTIMENT
Last analyzed: Oct 18, 2025 18:02
80
Friendliness Score
5.2%
Engagement Rate
100
Conversion Potential
2.0%
Monthly Growth
Marketing Analytics
25.7
Avg Post Score
15.9
Avg Comments
25
Brand Mentions
0
Posts/Hour
Top Post Types
text
100.0% (50)
Peak Activity Hours
Times shown in UTC (Coordinated Universal Time)
Local times are automatically converted based on your browser's timezone
5PM UTC
High
3PM UTC
Medium
6PM UTC
Low
Community Culture
Community Sentiment
POSITIVE
62.4K
Avg User Karma of Top Posts
70%
Commercial Acceptance
Content Preferences
Moderation Patterns
Rules & Compliance
19
Total Rules
Posting Requirements & Restrictions
No limit
Minimum Karma
No limit
Min Account Age (days)
ANY
Submission Type
Enabled
Flair System
Subreddit Rules
- No Medical Advice: Users may share personal experience and general suggestions. But, direct medical advice (including diagnosing, prescribing, or recommending specific treatments) is not allowed. "Do I have EDS?" and other similar posts are also not allowed.
- Posts containing symptom lists, asking whether to see a doctor, take certain medications, pictures of symptoms, or discussions of complex, sensitive, or urgent issues will be removed.
- Use the “No Advice, Please” flair if you do not want any advice.
- No Pregnancy-Related Morality-Based Judgements or Unwanted Comments: The decision to have children is an extremely personal one—Ehlers-Danlos syndrome or not. Discussions about pregnancy (and related topics, like abortion) are allowed on this subreddit; however, all posts/comments on the morality of having children with EDS (or other medical conditions) are prohibited. Furthermore, unwanted comments on pregnancy in general are also prohibited.
- No Memes or Off-Topic Posts (exception on Saturday): Memes and off-topic posts can only be posted on Saturdays. Posts on other days will be removed. Please use the assigned flair.
- No Gatekeeping: Gatekeeping, in reference to this sub, is defined as actively or passively dismissing and/or vocally doubting someone’s diagnosis, experiences or symptoms. This applies for speaking about one person or as a general comment talking about a group of people.
- This also includes comparing the severity of symptoms or their impact on people's lives, as well as making assumptions on anybody else's conditions or disability.
- No Party Tricks or Resetting Joints: “Party tricks” are deliberately bending body parts in ways that people without hypermobility can’t. They can be harmful for those with HSD/EDS, which is why any form of party tricks (including pictures, stories, etc.) are not allowed on this sub.
- No Polls, Surveys, or Research: To prevent the sub from flooding with redundant or exploitative posts, we do not, generally, allow submissions on polls, surveys, and/or research projects. If you want to post anything related, please contact the moderators first with a clear description of what you want to post and the purpose of it. We will get back to you regarding whether you can post it in the sub. We will only consider topics that directly relate to EDS. Other topics can be posted in r/disability_survey or r/SampleSize.
- Be Kind to Each Other (including Brigading) : This sub is a supportive space—please be kind and considerate. The following are prohibited and may result in removal or a ban: name-calling, insults, personal attacks, trolling, harassment, ableism, sexism, racism, bigotry, islamophobia, anti-semitism, anti-LGBTQ+ sentiments, abuse of mods, belittling others, doxxing, threats, or violations of Reddit’s policies (including brigading). We prioritize member safety, and violations will be handled accordingly.
- No Social Media, Fundraiser Links, or Self-Promotion: Self-promotion, fundraising, and reselling are not allowed. All outside social media links with the exception of YouTube are not allowed. You may link to any SFW subreddit as long as it is on topic.
- Describe Your Links: We require that ALL links (including studies and articles) have a description of what the link is.
- Links that might break any of our other rules, such as misinformation or medical advice, will be removed.
- Moderators reserve the right to remove links they deem unfit for the users of r/ehlersdanlos.
- Moderator Discretion: Due to the fact that rules cannot cover every possible situation, the moderators of this sub retain the right to remove a post or comment, even if it technically complies with the rules. Common reasons for removal include: photos of minors, inappropriate solicitations, false professional claims, misinformation, off-topic content, repetitive topics, meetup requests, and violations of Reddit’s content policy.
- Flairs and Trigger Warnings: Please use and respect tags and flairs. This sub is family friendly. Potentially triggering or NSFW content should be both spoilered and tagged NSFW. This includes potentially triggering topics like disordered eating, weight, sex, abuse, and medical trauma.
- If you're not sure if something is triggering, please spoiler and flair your post to be safe.
- We have a “No Advice, Please” flair. If you see this on a post, do not offer any advice.
- Repetitive Topics: In an effort to reduce the amount of repetitive posts and frequently asked questions on the sub, we encourage you to use the search function at the top of our subreddit to read posts on this topic.
Marketing Data Updated
Oct 18, 2025
Rules Updated
Oct 17, 2025
Compliance Updated
Oct 17, 2025