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r/eds PUBLIC
Ehlers Danlos Syndrome (EDS) is a underdiagnosed connective tissue disorder characterized by a genetic fault in collagen. It manifests as hypermobile joints and affects every organ system because we’re all made of connective tissue! We welcome all EDS subtypes, hypermobility spectrum disorder, Loeys Dietz, unnamed genetic disorders that present like EDS, self-diagnosed & suspected zebras. || || || Crowdsourced medical care saves lives. We welcome medical advice!
Marketing Summary
r/eds is a PUBLIC community on Reddit with over 32,816 members. It currently has a positive sentiment with an engagement rate of 8.8%. With a community friendliness score of 80, this subreddit presents a high conversion potential for authentic brand participation. Self-promotion is generally allowed according to recent analysis.
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Rules & Compliance
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Subreddit Rules
- Medical advice is ALLOWED!: We welcome medical advice, discussion about symptoms/medications, and diagnosis posts. If someone posts incorrect information, please reply to it and/or ask for them sources. We are all learning together.
- Please be kind, respectful, and supportive.: Please be kind, respectful, and supportive.
- No talk about getting banned.: Reddit-wide rules prohibit discussions of getting banned at other subreddits, considered “interference” and “showboating”. Although we sympathize if this has happened to you, we cannot allow this topic of conversation without endangering this community.
- Zero tolerance policy for accusing people of faking EDS: Zero tolerance for accusing someone of faking EDS or any other illness, including deceased people and people on social media. Philosophically, even if some people may not have EDS, we believe we are overall helping more people than not by believing all people about the state of their health/illness. Do not use language such as "munchausen by internet" or "munchies". You will be banned.
- No fundraising.: Due to EDS disability, most of us are underemployed and could use help paying for medical devices or medical bills. Please don't ask your fellow zebras for money. However, this community can help brainstorm how to get insurance coverage or other methods of funding or charity.
- Follow Reddit’s Rules of Conduct: All users must follow Reddit Content Policy at all times; you are responsible for reading and understanding it. Do not call out other users or other subs as this may cause community interference (which is against Reddit’s Content Policy).
- https://www.redditinc.com/policies/content-policy
- Mark all pictures and videos as “Spoilers”: People can tap to reveal them. You can also mark your posts as NSFW if that seems fitting, but only members with the appropriate settings can view NSFW content.
- You can ignore this rule if there are no body parts in the image and you’re sure that nobody would mind seeing it during lunch.
- Use the diagnosis megathread: All questions related to the diagnosis of EDS or HSD should be submitted as comments on the [diagnosis megathread](https://www.reddit.com/r/eds/s/cWk6JHNHRu). So if the goal is to figure out if you have EDS/HSD, you’ll get better answers there.
- https://www.reddit.com/r/eds/s/cWk6JHNHRu
What is r/eds?
r/eds is a public Reddit community created in November 2009 with over 32,816 members. Ehlers Danlos Syndrome (EDS) is a underdiagnosed connective tissue disorder characterized by a genetic fault in collagen. It manifests as hypermobile joints and affects every organ system because we’re all made of connective tissue! We welcome all EDS subtypes, hypermobility spectrum disorder, Loeys Dietz, unnamed genetic disorders that present like EDS, self-diagnosed & suspected zebras. || || || Crowdsourced medical care saves lives. We welcome medical advice!
The community has a positive sentiment and an engagement rate of 8.8%. With a friendliness score of 80, it is considered very welcoming to new members.
Self-promotion is generally allowed, making it a potential opportunity for authentic brand participation.
Frequently Asked Questions about r/eds
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