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r/dysautonomia PUBLIC
Dysautonomia is an umbrella term for conditions in which the autonomic nervous system malfunctions.
Marketing Summary
r/dysautonomia is a PUBLIC community on Reddit with over 76,028 members. It currently has a positive sentiment with an engagement rate of 1.5%. With a community friendliness score of 80, this subreddit presents a high conversion potential for authentic brand participation. Strict rules against self-promotion are in place, so marketing should focus strictly on value-driven community engagement.
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Rules & Compliance
Posting Requirements & Restrictions
Subreddit Rules
- Be Respectful/Civil: Respect is not optional here.
- Please be civil; no personal attacks. Remember incivility is not just about cursing out others, it can also refer to personal attacks, bigotry, trolling, or otherwise rude behavior.
- Please keep politics/religious discussions to a minimum as well, unless it directly affects those with dysautonomia or health conditions.
- Consult a Healthcare Professional
- users have been verified as medical professionals. Please consult with your doctor and follow their advice for your condition. We are not here to diagnose anyone with anything, which includes us being unable to interpret test results, guess if your symptoms could be ____ related or cause for worry. We understand you are worried, but we are more likely to do harm than good and can't help in these situations.
- This subreddit is not a substitute for medical advice or diagnosis.
- No Gatekeeping: Dysautonomia is a condition that varies greatly. Let's keep in mind that your symptoms may not exactly mirror another person's.
- Unless you are a person's doctor and have their complete medical, family, and treatment histories at your disposal, you have no way to determine if they have this condition and are unqualified to make that call.
- No Doctor/HCW Hate: We completely understand that many of you have had negative experiences with individuals in the healthcare system. We are not denying that these happen. It's okay to talk about them here, because we understand people need a place to vent.
- However, generalizing hateful statements about doctors (or any other health care workers) are not allowed here. We are not here to breed an "us vs them" environment. This hurts everyone involved and benefits no one.
- No Claiming Professional Credentials : As this is reddit and users are largely anonymous we have no way to verify anyone is who they say they are. Because of this, for the safety of everyone here we do not allow anyone to claim any sort of professional credentials as a health care worker. This is to prevent anyone giving harmful or misleading information while appearing to be a trusted source.
- No Drug Seeking: Suspicious questions about how to get certain medications are subject to removal.
- No Unapproved Surveys: To protect users from harmful and improper management of survey data we require all surveys to be approved before posting. If you wish to post a poll or survey for research, please contact the mods and explain the goal of the study in detail. We may also request proof of IRB approval or approval from the ethical committee. Please be aware, we do do not normally approve studies to be done on our members. We do not approve requests for feedback on products or services.
- No Blatant Misinformation: Posts with bad advice or misinformation will be removed to prevent bad information from continuing to spread. If the post is corrected, it will be reinstated.
- No Self Promotion or Fundraising: Self promotions are considered spam and will not be allowed. This includes Discords, websites, blogs, and social media.
- Members with our condition often have money issues of their own. While we feel for everyone here who is struggling financially, we feel like our platform isn't the best place for you to try and raise funds. Discussions on how to raise funds (that do not involve asking this community for money) are permitted. We do not allow any promotion of products or services.
- No Brigading: Don't use this subreddit to hunt down other subreddits. If you post content from somewhere else in a negative way, if you interact negatively with something from another sub that was cross posted here, or your post suggests interfering with another subreddit, your post will be removed and you may be temporarily or permanently restricted from our community.
- No Ban Evasion: Ban evasion, the use of new accounts to return to the community while banned, is against both the rules of our subreddit and the rules of Reddit.
- If you have been banned under this reason, Reddit ModTools has flagged your account as high suspicion of ban evasion and we have taken action regarding this.
- If you believe this Ban Evasion flag is an error, you must appeal directly to Reddit at https://www.reddit.com/appeal.
- No Comparisons or ‘Pain Olympics’: Do not compare your suffering with others, as everyone’s experience is relative. ‘Pain olympics’ refers to when a user compares their suffering/symptoms with another’s in an unsupportive way. For example, “my pain is worse than yours, stop whining”. This falls in line with our No Gatekeeping rule and we have a strict no-tolerance policy for these types of comments/posts.
- Don’t put others down to lift yourself up. We all have our own struggles.
- IV Fluids & IVIG: Due to an uptick in posts suggesting consistent IVs/ports/piccs/IV spas without lifestyle changes, trialing medications, or even diagnosis in some cases, we have decided to not allow posts recommending or asking about IV fluids. We suggest speaking to your doctor about the subject. We also do not currently allow posts about IVIG for POTS. Patients receiving these treatments may mention it as long as they are only speaking to their own experiences.
- No Suggesting AI/ChatGPT: We do not allow recommendation of AI tools due to lack of evidence/validation. Suggesting the use of AI tools for diagnostics/test results or medical advice will be promptly removed with no exceptions. While in the future these tools may be helpful, they are not reliable in their current state.
- If you circumvent this rule, you will receive a temp ban. If you repeatedly do so, the ban will be permanent.
- No Spam or Low-Effort Submissions: Unapproved "AMA" posts or "AITA" posts are not allowed. Do not repeatedly submit the same, or extremely similar, content in a thread or across the subreddit. Mods may also remove "low-effort" content. There is no minimum length for your post, but we do ask that you contribute meaningfully. Please respect the time and energy of other community members by not using us in place of a search engine. We do not allow AI-generated submissions.
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